Study Name:
At-Home Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC) Research Study
RECRUITMENT FORTHIS STUDY CLOSES IN:
THE STUDY IS NOW CLOSED
ABOUT THIS STUDY 
This study is for people with:
Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC)
Purpose:
Treatment
The main purpose of this study is to collect blood samples from volunteers to be used in various research studies at Cydan II, Inc. (Cydan). Your blood may assist researchers in developing a new treatment for arrhythmogenic right ventricular cardiomyopathy also known as arrhythmogenic right ventricular dysplasia (ARVC/D).
Sponsored By:
Cydan II, Inc. (Cydan)
PARTICIPATION REQUIREMENTS 
You can participate if you:
• Are between the ages of 18 and 50
• Have been diagnosed with Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC) or Arrhythmogenic Right Ventricular Dysplasia (ARVD)
• Have been diagnosed with Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC) or Arrhythmogenic Right Ventricular Dysplasia (ARVD)
You cannot participate if you:
• Are pregnant
• Have a known history of HIV, hepatitis, or other infectious diseases
• Experienced excess blood loss including blood donation defined as 250 mL in the last month or 500mL in the last two months
• Have a known history of HIV, hepatitis, or other infectious diseases
• Experienced excess blood loss including blood donation defined as 250 mL in the last month or 500mL in the last two months
What am I required to do for the study?
• Create a health profile
• Review study details
• Participate from home
• Review study details
• Participate from home
There are 1 locations for this study 
At-Home
United States
Frequently Asked Questions
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Will I be compensated for my time?
As a thank you for your time, we will provide you with a $50 Visa gift card for each home visit you participate in. You will receive the gift card immediately after the at-home blood collection appointment is completed.
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When can I withdraw from the study?
You can withdraw from the study or decline participation at any time without providing a reason.
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Why should I participate in an at-home research study?
The reasons are endless. By participating in an at-home research study, you are part of a process that may help researchers detect diseases earlier, and develop new therapeutics, diagnostics, and treatments that may save thousands of people each year.
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Is my information kept private?
Your safety and privacy are our primary concerns. All private health information (PHI) provided to Sanguine is kept confidential and coded, so no one can identify you or connect you with your medical information. No samples we share with researchers contain any information that can directly identify you. We implement policies and procedures to protect your PHI in compliance with the law. If you want to learn more about your privacy rights, please see our privacy policy.
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Do I need to have health insurance?
No. You do not need to have health insurance in order to qualify for the study. However, to participate in most studies, you will need to provide proof of your diagnosis. Even if you are not currently seeing a physician, you can still sign an authorization for Medical Record Release from your former physician that can serve as proof of diagnosis.