Sickle Cell Anemia Study - Nationwide | Pfizer - Sanguine

Help accelerate research for

Sickle Cell Disease

See if you qualify to participate in this at-home research study today. You can contribute to the development of new ways to manage Sickle Cell Disease.

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By clicking sign up now, you agree to our privacy policy and terms and conditions consent to answer screening questions for potential enrollment in an active research study.

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By clicking continue, you agree to our privacy policy and terms and conditions consent to answer screening questions for potential enrollment in an active research study.

Study Name:

PROGRESS Study
A Low-Interventional Study of an Electronic Sickle Cell Disease Patient Reported Outcomes in Sickle Cell Participants

About This Study
This study is for people with:

Sickle Cell Disease

Number of participants:

150 participants

Sponsored By:

Pfizer

Compensation Up To:

$1305

Purpose:

The purpose of this study is to learn more about painful crisis in people with Sickle Cell Disease. For this reason, Pfizer is conducting a study to understand how people with Sickle Cell Disease feel on a daily basis, treat these painful episodes including if they treat themselves at home or go to a doctor’s office/emergency room, as well as the types of medications that are taken during these episodes.

Procedures & Assessments:

If you are enrolled, a member of the study team will have a monthly phone call with you about 6 times and will visit you in your home one time. You will receive an electronic study diary from a member of the study staff during your first in-home study visit. You will be asked to type in the electronic study diary that describes how you are feeling on a daily basis for 6 months. Each diary completion takes 5 minutes to complete. You will be asked to provide blood samples once, at the beginning of the study. These blood samples may help Pfizer better understand Sickle Cell Anemia.

Do I Qualify?
You may qualify if you:
  • Are 18 years of age or older
  • Confirmed diagnosis of stable SCD (HbS/S or HbS/β0 -thalassemia) at screening.
  • Live in United States
You may not qualify if you:
  • Have evidence or history of clinically significant hematological (non-SCD), renal, endocrine, pulmonary, gastrointestinal, cardiovascular (including overt stroke but excluding silent cerebral infarct), hepatic (excluding cholelithiasis), psychiatric or neurological disease as assessed from medical records.
  • Have a history of simple transfusion less than 4 weeks of Day 1 as assessed from medical records.
  • Are pregnant
Study Locations
Participate from home!

United States

See if you qualify to participate:

How it Works

It’s a simple, three-step process.

Step 1
Tell us about yourself

Submit a health profile by answering basic questions about your medical history.

Step 2
See if you qualify

Speak with a research coordinator to learn more about what is required to participate.

Step 3
Participate from home

Complete study requirements from home with the help of our mobile health staff.

Step 1
Tell us about yourself

Submit a health profile by answering basic questions about your medical history.

Step 2
See if you qualify

Speak with a research coordinator to learn more about what is required to participate.

Step 3
Participate from home

Complete study requirements from home with the help of our mobile health staff.

Who We Are

We are the missing link in clinical trials, connecting patients and researchers seamlessly and conveniently using a mobile health platform to advance medical research from home. Our goal is to develop mobile technologies that empower patients to participate in research for conditions that matter most to them, regardless of their location or ability to travel.

We work directly with patients and advocacy groups to accelerate research through convenience and transparency while guiding each patient every step of the way.

Sanguine's Expertise in Accelerating Research

60,000+
Members in
our community
3
Average # of times a
member has participated
1,0000+
Studies
completed by Sanguine
60,000+
Members in
our community
3
Average # of times a
member has participated
1,0000+
Studies
completed by Sanguine
PATIENT TESTIMONIALS
"It was my pleasure to work with Sanguine and its representatives to provide specimens that could lead to life saving studies in the future. Thank you for the opportunity to give a little back to the type of research from which I have benefitted so much."
Boston, MA
PATIENT TESTIMONIALS
"I love that I am notified through every step of the process. Its wonderful that I can do it from home because I have small children. My phlebotomists is professional but so friendly and it puts me at ease."
Los Angeles, CA
PATIENT TESTIMONIALS
"Very nice that they came to my house - made it very convenient and super easy to participate in the study! Especially since I'm in law school right now and probably too busy otherwise to participate."
San Francisco, CA

Frequently Asked Questions

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Will I be compensated for my time?
You will be reimbursed for each planned study visit and diary you complete. If you leave the study early for any reason, you will be paid for each study visit and diary you have already completed. You will be receive reimbursement approximately every two weeks.
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When can I withdraw from the study?
You can withdraw from the study or decline participation at any time without providing a reason.
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How does the at-home process work?
Once you sign up, we will review your health profile and contact you if you might qualify for a research study. If you may qualify for a study, a clinical research coordinator (Sanguine Tel: 855-836-4759) will contact you within 48 hours to confirm your health information and tell you more about what is required to participate. When you are ready to be scheduled, your clinical research coordinator will work with you to schedule your at­-home visit. One of Sanguine’s mobile health staff members will meet you in the privacy and comfort of your home to explain the research study and perform the sample collection.
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Is my information kept private?
Your safety and privacy are our primary concerns. All private health information (PHI) provided to Sanguine is kept confidential and coded, so no one can identify you or connect you with your medical information. No samples we share with researchers contain any information that can directly identify you. We implement policies and procedures to protect your PHI in compliance with the law. If you want to learn more about your privacy rights, please see our privacy policy.
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Do I need to have health insurance?
No. You do not need to have health insurance in order to qualify for the study. However, to participate in most studies, you will need to provide proof of your diagnosis. Even if you are not currently seeing a physician, you can still sign an authorization for Medical Record Release from your former physician that can serve as proof of diagnosis.

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