
Help accelerate research for
Dravet Syndrome
See if you qualify to participate in this at-home research study today. Your contribution could help find new treatments.
By clicking continue, you agree to our privacy policy and terms and conditions consent to answer screening questions for potential enrollment in an active research study.
By clicking continue, you agree to our privacy policy and terms and conditions consent to answer screening questions for potential enrollment in an active research study.
Study Name:
Prospective Collection of Whole Blood from Healthy Subjects and Those Diagnosed with Dravet Syndrome to Identify Potential Biomarkers for Dravet Syndrome
This study is for people with:
Dravet Syndrome
Number of participants:
50 participants
Sponsored By:
Stoke Therapeutics
Compensation:
$100
Purpose:
Stoke Therapeutics is currently developing investigative drug STK-001 for the treatment of Dravet syndrome (DS) that is caused by loss of function SCN1A mutations leading to haploinsufficiency of Na V 1.1 protein. STK-001 is a synthetic antisense oligonucleotide (ASO) intended to increase the level of productive SCN1A mRNA transcript and consequently increase the expression of Na V 1.1 protein.
Length:
30-45 minutes
You may qualify if you:
- Are between the ages of 2-25
- Have been diagnosed Dravet Syndrome
- Live in United States
You may not qualify if you:
- Have been diagnosed with a severe autoimmune condition or have a known history of human immunodeficiency virus, hepatitis virus or other infectious diseases
- Experienced excess blood loss including blood donation defined as 250 mL in the last month or 500 mL in the last two months
- Have taken an investigational medicine or participated in a double-blind drug trial in the last 3 months or have participated in any gene therapy trial at any point.
- Have or are participating in any trial with STK-001.
- Have SCN1A testing results of negative (no variants of clinical significance identified).
Participate from home!
United States
How it Works
It’s a simple, three-step process.

Submit a health profile by answering basic questions about your medical history.

Speak with a research coordinator to learn more about what is required to participate.

Complete study requirements from home with the help of our mobile health staff.
Who We Are
We are the missing link in clinical trials, connecting patients and researchers seamlessly and conveniently using a mobile health platform to advance medical research from home. Our goal is to develop mobile technologies that empower patients to participate in research for conditions that matter most to them, regardless of their location or ability to travel.
We work directly with patients and advocacy groups to accelerate research through convenience and transparency while guiding each patient every step of the way.
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