Dravet Syndrome Study (Custom) - Sanguine

Help accelerate research for

Dravet Syndrome

See if you qualify to participate in this at-home research study today. Your contribution could help find new treatments.

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By clicking continue, you agree to our privacy policy and terms and conditions consent to answer screening questions for potential enrollment in an active research study.

Ready to sign up?

By clicking continue, you agree to our privacy policy and terms and conditions consent to answer screening questions for potential enrollment in an active research study.

Study Name:

Prospective Collection of Whole Blood from Healthy Subjects and Those Diagnosed with Dravet Syndrome to Identify Potential Biomarkers for Dravet Syndrome

About This Study
This study is for people with:

Dravet Syndrome

Number of participants:

50 participants

Sponsored By:

Stoke Therapeutics

Compensation:

$100

Purpose:

Stoke Therapeutics is currently developing investigative drug STK-001 for the treatment of Dravet syndrome (DS) that is caused by loss of function SCN1A mutations leading to haploinsufficiency of Na V 1.1 protein. STK-001 is a synthetic antisense oligonucleotide (ASO) intended to increase the level of productive SCN1A mRNA transcript and consequently increase the expression of Na V 1.1 protein.

Length:

30-45 minutes

Do I Qualify?
You may qualify if you:
  • Are between the ages of 2-25
  • Have been diagnosed Dravet Syndrome
  • Live in United States
You may not qualify if you:
  • Have been diagnosed with a severe autoimmune condition or have a known history of human immunodeficiency virus, hepatitis virus or other infectious diseases
  • Experienced excess blood loss including blood donation defined as 250 mL in the last month or 500 mL in the last two months
  • Have taken an investigational medicine or participated in a double-blind drug trial in the last 3 months or have participated in any gene therapy trial at any point.
  • Have or are participating in any trial with STK-001.
  • Have SCN1A testing results of negative (no variants of clinical significance identified).
Study Locations
Participate from home!

United States

See if you qualify to participate:

How it Works

It’s a simple, three-step process.

Step 1
Tell us about yourself

Submit a health profile by answering basic questions about your medical history.

Step 2
See if you qualify

Speak with a research coordinator to learn more about what is required to participate.

Step 3
Participate from home

Complete study requirements from home with the help of our mobile health staff.

Step 1
Tell us about yourself

Submit a health profile by answering basic questions about your medical history.

Step 2
See if you qualify

Speak with a research coordinator to learn more about what is required to participate.

Step 3
Participate from home

Complete study requirements from home with the help of our mobile health staff.

Who We Are

We are the missing link in clinical trials, connecting patients and researchers seamlessly and conveniently using a mobile health platform to advance medical research from home. Our goal is to develop mobile technologies that empower patients to participate in research for conditions that matter most to them, regardless of their location or ability to travel.

We work directly with patients and advocacy groups to accelerate research through convenience and transparency while guiding each patient every step of the way.

Sanguine's Expertise in Accelerating Research

25,000+
Members in
our community
3
Average # of times a
member has participated
500+
Studies
completed by Sanguine
25,000+
Members in
our community
3
Average # of times a
member has participated
500+
Studies
completed by Sanguine
PATIENT TESTIMONIALS
"It was my pleasure to work with Sanguine and its representatives to provide specimens that could lead to life saving studies in the future. Thank you for the opportunity to give a little back to the type of research from which I have benefitted so much."
Boston, MA
PATIENT TESTIMONIALS
"I love that I am notified through every step of the process. Its wonderful that I can do it from home because I have small children. My phlebotomists is professional but so friendly and it puts me at ease."
Los Angeles, CA
PATIENT TESTIMONIALS
"Very nice that they came to my house - made it very convenient and super easy to participate in the study! Especially since I'm in law school right now and probably too busy otherwise to participate."
San Francisco, CA

Frequently Asked Questions

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Will I be compensated for my time?
As a thank you for your time, we will provide you with a $100 Visa gift card for each home visit you participate in. You will receive the gift card immediately after the at-home appointment is completed.
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When can I withdraw from the study?
You can withdraw from the study or decline participation at any time without providing a reason.
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Why should I participate in an at-home research study?
The reasons are endless. By participating in an at-home research study, you are part of a process that may help researchers detect diseases earlier, and develop new therapeutics, diagnostics, and treatments that may save thousands of people each year.
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Is my information kept private?
Your safety and privacy are our primary concerns. All private health information (PHI) provided to Sanguine is kept confidential and coded, so no one can identify you or connect you with your medical information. No samples we share with researchers contain any information that can directly identify you. We implement policies and procedures to protect your PHI in compliance with the law. If you want to learn more about your privacy rights, please see our privacy policy.
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Do I need to have health insurance?
No. You do not need to have health insurance in order to qualify for the study. However, to participate in most studies, you will need to provide proof of your diagnosis. Even if you are not currently seeing a physician, you can still sign an authorization for Medical Record Release from your former physician that can serve as proof of diagnosis.

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