ATTR study - Sanguine

Help accelerate research for

TTR Amyloidosis

See if you qualify to participate in this at-home research study today. Your contribution could help find new treatments.

Ready To Sign Up?

By clicking continue, you agree to our privacy policy and terms and conditions consent to answer screening questions for potential enrollment in an active research study.

Ready to sign up?

By clicking continue, you agree to our privacy policy and terms and conditions consent to answer screening questions for potential enrollment in an active research study.

Study Name:

A Multi-Site Tissue Repository Providing Annotated Biospecimens for Approved Investigator-Directed Biomedical Research Initiatives

About This Study
This study is for people with:

wtATTR Amyloidosis or hATTR Amyloidosis

Number of participants:

10 participants

Sponsored By:

Sanguine Biosciences

Compensation:

$50

Purpose:

Your participation in this research study will aid in the development of more effective treatment options for patients living with wild-type and hereditary TTR Amyloidosis by allowing researchers to analyze biomarkers that may influence the disease’s development.

Length:

30-45 minutes

Do I Qualify?
You may qualify if you:
  • Are 18 years of age or older
  • Have been diagnosed with or possess a genetic mutation linked to TTR amyloidosis (ATTR)
  • Live in United States
You may not qualify if you:
  • Are pregnant
  • Have a known history of HIV, hepatitis or other infectious diseases
  • Experienced excess blood loss including blood donation defined as 250 mL in the last month or 500 mL in the last two months
Study Locations
Participate from home!

United States

See if you qualify to participate:

How it Works

It’s a simple, three-step process.

Step 1
Tell us about yourself

Submit a health profile by answering basic questions about your medical history.

Step 2
See if you qualify

Speak with a research coordinator to learn more about what is required to participate.

Step 3
Participate from home

Complete study requirements from home with the help of our mobile health staff.

Step 1
Tell us about yourself

Submit a health profile by answering basic questions about your medical history.

Step 2
See if you qualify

Speak with a research coordinator to learn more about what is required to participate.

Step 3
Participate from home

Complete study requirements from home with the help of our mobile health staff.

Who We Are

We are the missing link in clinical trials, connecting patients and researchers seamlessly and conveniently using a mobile health platform to advance medical research from home. Our goal is to develop mobile technologies that empower patients to participate in research for conditions that matter most to them, regardless of their location or ability to travel.

We work directly with patients and advocacy groups to accelerate research through convenience and transparency while guiding each patient every step of the way.

Sanguine's Expertise in Accelerating Research

25,000+
Members in
our community
3
Average # of times a
member has participated
500+
Studies
completed by Sanguine
25,000+
Members in
our community
3
Average # of times a
member has participated
500+
Studies
completed by Sanguine
PATIENT TESTIMONIALS
"It was my pleasure to work with Sanguine and its representatives to provide specimens that could lead to life saving studies in the future. Thank you for the opportunity to give a little back to the type of research from which I have benefitted so much."
Boston, MA
PATIENT TESTIMONIALS
"I love that I am notified through every step of the process. Its wonderful that I can do it from home because I have small children. My phlebotomists is professional but so friendly and it puts me at ease."
Los Angeles, CA
PATIENT TESTIMONIALS
"Very nice that they came to my house - made it very convenient and super easy to participate in the study! Especially since I'm in law school right now and probably too busy otherwise to participate."
San Francisco, CA

Frequently Asked Questions

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Will I be compensated for my time?
As a thank you for your time, we will provide you with a $50 Visa gift card for each home visit you participate in. You will receive the gift card immediately after the at-home appointment is completed.
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When can I withdraw from the study?
You can withdraw from the study or decline participation at any time without providing a reason.
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Why should I participate in an at-home research study?
The reasons are endless. By participating in an at-home research study, you are part of a process that may help researchers detect diseases earlier, and develop new therapeutics, diagnostics, and treatments that may save thousands of people each year.
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Is my information kept private?
Your safety and privacy are our primary concerns. All private health information (PHI) provided to Sanguine is kept confidential and coded, so no one can identify you or connect you with your medical information. No samples we share with researchers contain any information that can directly identify you. We implement policies and procedures to protect your PHI in compliance with the law. If you want to learn more about your privacy rights, please see our privacy policy.
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Do I need to have health insurance?
No. You do not need to have health insurance in order to qualify for the study. However, to participate in most studies, you will need to provide proof of your diagnosis. Even if you are not currently seeing a physician, you can still sign an authorization for Medical Record Release from your former physician that can serve as proof of diagnosis.

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Contact
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General Health
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Treatment Info

By clicking continue, you agree to our privacy policy and consent to answer screening questions for potential enrollment in an active research study.

Contact Information

Personal Information

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question 1 of 8

Have you been diagnosed with Lupus by your doctor?

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question 2 of 8

Do you have any other autoimmune conditions besides Lupus?

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question 3 of 8

Have you participated in a drug trial within the past 30 days?

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question 4 of 8

Have you donated more than 250mL of blood in the past 30 days?

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question 5 of 8

According to your doctor, was your lupus classified as moderate or severe?

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question 6 of 8

Are you currently pregnant or nursing?

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question 7 of 8

Have you ever had an infectious disease aside from common things like colds, flu, sore throat, and ear infections.

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question 8 of 8

Do you know your most recent SLEDAI score?

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question 1 of 7

Are you currently taking any medications for your Lupus?

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question 2 of 7

Have you taken Rituximab (ie: Rituxan) in the past 24 months?

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question 3 of 7

Have you taken Cyclophosphamide (ie: Cytoxan) in the last 6 months?

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question 4 of 7

Have you taken any of the following treatments in the past 12 months?

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question 5 of 7

Are you currently taking any of the following medications?

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question 6 of 7

Are you currently taking any CD38 antibody therapies?

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question 7 of 7

Are you currently taking any steroid treatments?

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A Research Coordinator will review your completed form and contact you with further instructions.